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Living Loud, Living Fully: Carswell’s Life After Kidney Transplant

 

For Carswell, life has always been about navigating challenges with heart and finding joy and identity in the spaces between. As a trans, bisexual kidney transplant recipient, Carswell embodies what it means to live fully and unapologetically. This Pride Month, we’re honored to share their story: one of resilience, creativity, and the transformative power of organ donation.

Diagnosed at age six with primary hyperoxaluria, a rare genetic condition that damages the kidneys and liver, Carswell spent much of their childhood living what felt like a “normal” life. “When you’re diagnosed young, you don’t really think about your life as different,” they shared. “It’s just your life.”

But in March 2020, everything changed. Carswell’s kidneys had failed, and they were placed on dialysis three times a week. At the same time, they were enrolled in a clinical trial that offered hope, but only after confirmation that they had been receiving the placebo did they finally gain access to the real treatment.

It helped. But the journey wasn’t easy.

Carswell experienced setbacks and complications, including a rare virus, time off the transplant list, and physical exhaustion. “I was a slug in my own life,” they said. “Sleeping, doing the bare minimum. I couldn’t do the things I loved.”

But on April 8, 2022, after years of uncertainty, a call came in: a kidney was available. The transplant took place the next day. “It was a whirlwind,” they recalled. “We had to call my mom, grab our bags, tell everyone. I was just about to leave dialysis when they told me. It felt surreal.”

A Return to the Stage—and Self

Carswell’s life after transplant hasn’t been without challenges, but it’s come with more freedom, connection, and creativity.

A passionate performer and storyteller, Carswell has always found joy in theater and writing. “There’s something about the connection on stage, you don’t get that anywhere else,” they shared. After the transplant, they enrolled in community college, began studying film, and started dreaming big again.

Though they had to step back from a recent role, Carswell treasures every performance. “One of my best friends played my sister. Her character died, and I had to scream and cry over her, and we kept trying not to laugh the entire time. It was beautiful.”

Pride, Identity & Choosing to Live Boldly

As someone who identifies as trans and bisexual, Pride Month carries deep significance for Carswell. “Pride is both a celebration and a recognition of how far we’ve come and how far we still have to go,” they said. “It’s about not being silenced. About saying, we’re here, we’re queer, and we’re not going anywhere.

They see clear parallels between their medical journey and their identity journey. “Transplant forced me to reclaim control over my life. So did transitioning. Both have made me more vocal, more honest, and more focused on the life I want to live.”

The Power of Organ Donation

“The last three years have been the most joyous of my life,” Carswell said. “That’s only because I was able to receive a kidney. It didn’t fix everything, but it gave me the chance to try.”

That chance to live, to love, to create is the very gift that donation makes possible.

Be the Reason Someone Gets Their Second Act

During Pride Month and beyond, we celebrate people like Carswell who remind us that every life is worthy, every story matters, and every “yes” to do

nation creates a ripple of hope.

You can be part of that ripple.

👉 Register today at www.donateLIFEcalifornia.org
👉 Talk to your family about your decision
👉 Share your story to inspire others

Because someone like Carswell is out there, waiting for their spotlight, their story, and their second chance.

Donate Life California Celebrates Successful Passage of AB 1268, Signed by Governor Newsom

New Legislation to Transform Organ Donation and Save Lives

SACRAMENTO, CA, October 16, 2023 – AB 1268, a landmark legislation that promises to significantly impact organ and tissue donation in the state, was signed by Governor Newsom. AB 1268, championed by Assemblywoman Jacqui Irwin (D-Thousand Oaks), represents a crucial step forward in streamlining the organ donor registration process. This legislation makes organ and tissue donor registration more accessible and efficient for Californians. By including a checkbox on the state income tax return, individuals can now opt to become donors with ease, contributing to the growth of the California Organ and Tissue Donor Registry.

Assemblywoman Irwin shares, “With this new law, Californians will have the chance to help save more lives through this important program. Ensuring we have a strong organ donation registry is critical for Californians and by forging this new partnership between the Franchise Tax Board and Donate Life California we hope to potentially save more lives every year by connecting more patients in need with donors.”

Key Highlights of AB 1268:

  • Efficient Information Transfer: The Franchise Tax Board will be responsible for annually sending this information to the California Organ and Tissue Donor Registry for individuals who have chosen to become organ donors. This streamlined process will enhance the accuracy and efficiency of organ donor registrations.
  • Simplified Organ Donor Registration: AB 1268 will require the Franchise Tax Board to revise the California resident income tax return to include a checkbox for individual taxpayers who self-prepare their returns to elect to be an organ donor with the California Organ and Tissue Donor Registry.

“Since the creation of the Donate Life California registry, Californians have taken even greater strides to help save the lives of thousands,” stated Jim Martin, Chief Executive Officer of Donate Life California. Donate Life California feels that every Californian has the power to make a difference when they sign up to be an organ, eye, and tissue donor, and AB 1268 will help to create more opportunities for donation while giving hope to over 20,000 Californians who are waiting for a life-saving organ.

Facts about donation

  • Over 100,000 Americans are currently waiting for an organ transplant, more than 20,000 live in California. An organ transplant is their only remaining medical option.
  • Sadly, an average of 18 patients die every day while waiting, simply because the organ they needed was not donated in time.
  • 2022 was a groundbreaking year as more than 42,800 organ transplants were performed, and the US surpassed its 1 millionth transplant.

About Donate Life California:

Donate Life California is the nonprofit, state-authorized organ, eye and tissue donor registry. As a public service, the registry assures that all personal information is kept confidential and stored in a secure database, accessible only to authorized organ and tissue recovery personnel at the time of an actual donation opportunity. The registry is administered by Donate Life California and California’s four nonprofit, federally designated organ recovery organizations: Donor Network West, Lifesharing, OneLegacy and Sierra Donor Services. For more information about Donate Life California, please visit www.donateLIFEcalifornia.org or in Spanish at www.doneVIDAcalifornia.org.

Please visit Donate Life California’s Stories of Hope web page to read inspiring stories about organ and tissue donors and recipients from around the state.

Governor Newsom Signs AB 1374 to Improve DMV Organ Registration Language, Increasing Donors

New Law Strengthens California Department of Motor Vehicles and Donate Life California Partnership

SACRAMENTO, CA, September 22, 2021 – AB 1374 was signed into law by Governor Gavin Newsom. Sponsored by Assemblymember Kevin Mullin (D-22), AB 1374 is a critical step in the effort to increase the number of registered organ donors in California. The new law creates a pathway to amend the language of the DMV donor registration, in the hopes of encouraging more Californians to say “yes” to organ, eye and tissue donation.
California has the longest transplant waiting list in the country, with more than 20,000 patients currently in need of a lifesaving organ. The partnership between the Department of Motor Vehicles (DMV) and Donate Life California is key to saving lives. Since 2005, the DMV has accounted for more than 95% of the 17.5 million registrations to the Donate Life California organ and tissue registry. Leaders from both organizations hailed the new law as an important turning point.
“We have long enjoyed our partnership with Donate Life California. Our joint efforts have saved many lives,” said Kathleen Webb, DMV Chief Deputy Director. “We look forward to more success registering organ, eye and tissue donors with this new agreement in place.”
“Since the creation of the Donate Life California registry, Californians have taken even greater strides to help save the lives of thousands,” stated Jim Martin, Chief Executive Officer of Donate Life California. “Every Californian has the power to make a difference when they sign up to be an organ, eye, and tissue donor, and we hope our simplified partnership with the DMV helps Californians to understand the importance of that decision.”
“OPOs are proud of their work with Donate Life California and the DMV to pass AB 1374 and increase organ donation,” said Tom Mone, Chair of Donate Life California’s Board of Directors and CEO of OneLegacy, Southern California’s OPO or Organ Procurement Organization. “Our work as OPOs starts with collaboration with all 334 California hospitals who refer potential donors, then by supporting families and donors who choose to leave a life-saving legacy, medically assessing and treating every donor to maximize the number of lives saved and making sure that life-saving organs get to the patients with the greatest need. This cannot happen without advocating for these patients by supporting legislation like AB 1374 and educating communities on the importance of registration, as well as investing in science that improves transplantation, all to fulfill our commitment to advance solutions that save more lives.”
Facts about donation
• In 2020, organ and tissue donors in California saved more than 4,500 lives and improved the quality of life for hundreds of thousands more.
• 18 people across the country die each day awaiting lifesaving organ transplants.
• Approximately 20,000 people in California need a lifesaving organ transplant — approximately 19% of the national transplant waiting list.
About Donate Life California:
Donate Life California is the nonprofit, state-authorized organ, eye and tissue donor registry. As a public service, the registry assures that all personal information is kept confidential and stored in a secure database, accessible only to authorized organ and tissue recovery personnel at the time of an actual donation opportunity. The registry is administered by Donate Life California and California’s four nonprofit, federally designated organ recovery organizations: Donor Network West, Lifesharing, OneLegacy and Sierra Donor Services. For more information about Donate Life California, please visit www.donateLIFEcalifornia.org or in Spanish at www.doneVIDAcalifornia.org.
Please visit Donate Life California’s Stories of Hope web page to read inspiring stories about organ and tissue donors and recipients from around the state.

Contact:
Lacey Wood
Donate Life California
(530) 308-7046 (cell) | (916) 678-6006 (office)
lacey@donateLIFEcalifornia.org