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It’s Pride Month! Let’s Talk About the HOPE Act!

June marks the celebration of Pride Month, where we honor LGBTQ history and commemorate this year’s 50th anniversary of the Stonewall riots.

Pride. Hope. Life.

The Stonewall Riots took place at the end of June 1969 when the NYPD raided the Stonewall Inn, a gay bar and tavern. Patrons and supporters of the inn resisted and started an uprising, which would serve as a turning point for the expansion of LGBTQ rights across the US.

While the fight still continues to this day, major strides have been made for LGBTQ rights. We are happy to say that advancements have been made in the world of organ and tissue donation as well, particularly with the passage of the HIV Organ Policy Equity (HOPE) Act in 2013.

What is the HOPE Act?

The HOPE Act was introduced by California Senator Barbara Boxer in 2013. It was passed by the U.S. Congress and signed into law by former President Barack Obama on November 21, 2013. The California State Legislature followed up with similar legislation in 2016 to bring state law in line with the HOPE Act.

The law began implementation in November 2015 to research transplantation of organs from HIV+ donors into HIV+ candidates for a transplant. The HOPE Act eventually enabled HIV+ persons to both receive and donate organs beginning in 2015.

Pride Month

Prior to the passage of the legislation, anyone who was HIV+ was unable to register themselves as an organ donor. This provides immense hope to those in need of a transplant and widens our potential donor pool so that more lives can be saved.

With the development of the HOPE Act, there is now officially no disqualifying conditions when signing up to be an organ donor. Age, illness, and disease do not prevent you from registering as an organ donor. For more information on donation, click here.

How the HOPE Act Has Saved Lives

The HOPE Act enables potential HIV+ donors to match with other HIV+ persons in need of a transplant. Because of the HOPE Act, 100 organs have been transplanted since 2015 and through 2018.

Three years of HOPE.

There are over thirty transplant hospital nationwide participating in the HIV+ transplant program. In California alone, we have two hospitals eligible to perform HIV+ transplants. Thanks to the HOPE Act and these transplant hospitals, we will continue to save lives in perpetuity.

For more information on the HOPE Act, visit the United Network for Organ Sharing’s (UNOS) website.

November 9th Marks the Beginning of National Donor Sabbath

Beginning today November 9th and thru November 11th, Donate Life California invites you to join us in celebrating National Donor Sabbath! Every year, we celebrate National Donor Sabbath for persons of all faiths to honor donors who have saved lives through organ, eye and tissue donation.

This National Donor Sabbath, be a symbol of hope for those who are waiting.

Along with taking a moment to pause and honor all the donors who have saved lives, National Donor Sabbath also looks to spread the word about the importance and need of organ, eye and tissue donation across all faiths and congregations. With over 114,000 people waiting for a life-saving organ transplant, the need for new organ donors remains critically important.

National Donor Sabbath Encourages Education on Organ Donation

When it comes to registering as an organ and tissue donor, many mistakenly believe that their religion prevents them from being an organ and tissue donor. In fact, most religions support and even encourage organ donation.

Over the past five years, key religious figures such as Pope Francis and the Dalai Lama have vocally expressed how organ donation is one of “the greatest service(s) to mankind.” Many religions believe organ donation to be a final act of kindness and generosity. If you are interested in checking out the views of various religions on organ donation, please click here.

"Organ donation is a serious practice of "dharma" and the greatest service to mankind." - The Dalai Lama

National Donor Sabbath encourages all faith leaders and followers to research his or her religious group’s tradition and position on organ and tissue donation and transplantation, as well any other ethical issues that may be of concern. In addition, each faith leader should be mindful of any new resolutions or positions adopted at his or her religious group’s national assembly. The group’s position is also subject to change at any moment.

How You Can Help This National Donor Sabbath

For all those attending religious congregations on this National Donor Sabbath weekend, we encourage you to strike up conversations about organ and tissue donation with your fellow parishioners. Additionally, discussing the matter with your leaders of faith may encourage them to bring up the topic of organ, eye and tissue donation during your service. And as always, we encourage you to share our message of saving lives through your own social media outlets. For additional information on National Sabbath, please click here.

Before we let you go, here are some quick facts on organ donation that you can share with members of your congregation:

  • Almost 35,000 patients began new lives in 2017 thanks to organ transplants (about 92 every day).
  • Nearly 22,000 people in California – over 114,000 people nationally – are currently waiting for an organ transplant.
  • Sadly, over of 20 people die every day while waiting, because the organ they needed is not donated in time.
  • A living donor can save a life by donating a kidney or a portion of their liver, lung, pancreas or intestine. For more information on living kidney donation, go to Living Donation California.
  • On average, there are more than 30,000 tissue donors and more than 1 million tissue transplants are performed each year; the surgical need for tissue has been steadily rising.
  • Approximately 40,000 patients have their sight restored through corneal transplants each year.

"Donating organs is a gesture of love." - Pope Francis

 

Everything You Need to Know About the Organ Donation Process

For many, the organ and tissue donation process may be one they are completely unfamiliar with, even if they are registered donors. Many misunderstandings and myths about how organs and tissue are recovered have been shared throughout social media and even been perpetrated on television for several decades. Today, we want to give you a quick rundown on how the process actually works.

Registering as a Donor

The first step is registering to be an organ and tissue donor! For decades, Donate Life California has worked with the California Department of Motor Vehicles to register donors throughout the state. Anyone can register as a donor at the DMV when they go in to apply for or renew a California Driver’s License or identification card.

DMV To-Do List

On your license or ID application or renewal form, you will be asked if you would like to be registered as an organ or tissue donor. Simply check the box marked “YES! I want to be an organ, eye and tissue donor” and you will be put on the Donate Life California Donor Registry. Additionally, if you don’t find yourself at a DMV anytime soon and want to register as a donor at your own convenience, you can register on our website here.

You also have the ability to remove yourself from the registry at any point by contacting Donate Life California.

The Organ Donation Process

One of the most common myths out there regarding organ donation is that emergency medical personnel will not attempt to save your life if they see you are an organ and tissue donor. This is false. Whether someone is in a hospital or at the scene of an accident, every effort is made to save your life. Organ donation is not even discussed during these life-saving procedures. Medical professionals, such as doctors, have taken oaths to do no harm and that includes placing anything, including donation, above saving a patient’s life.

Only after all lifesaving procedures have been exhausted does the next step in the process take place – the referral of a potential donor. This only happens when an individual is declared brain dead by two different doctors unrelated to the transplant process. Alternatively, the referral process can also begin when the family of the deceased takes them off mechanical support. Only then do hospitals refer the patient to the local organ procurement organization (OPO) to begin a conversation about donation.

After a potential donor is referred, medical staff from the OPO begin to evaluate the deceased to determine if they are a suitable candidate for donation. Once this review is completed, the OPO staff will speak to the family if the deceased individual is eligible to be a donor.

1 organ donor can save 8 lives.

Once the potential donor has been evaluated, the family is then notified if their loved one had registered to be an organ donor. If no decision had been made beforehand, the individual’s family then decides whether to move forward with the donation process or not. We always recommend sharing your decision on donation with your family so that they are aware of your wishes.

It is at this point, once consent is granted by the donor’s family or by the individual through the Donate Life California Registry, that the organ and tissue recovery can take place. The donor’s family is given a chance to say goodbye to their loved one and any additional testing would also occur at this step. When any organs and tissue are then recovered, the United Network for Organ Sharing finds a suitable match for someone on the organ and tissue transplant waiting list.

After the recovery procedure is finished, the OPO returns the body to the family. The donor’s family can then proceed with any funeral arrangement they had planned, be it open casket or cremation. Our OPOs will ensure that the organ and tissue recovery process will not interfere with your after-death plans.

We hope that this has been informative enough and cleared up any questions you may have had about the organ donation process! If you have any additional questions, please visit our website at www.donateLIFEcalifornia.org for additional information.

Proud to be an organ donor.